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Webinar: Zero Leprosy for Whom in the Post-COVID World?

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26, 28, 29, 30 January, 2021 (4 days), 20:00-22:00 (JST), 8:00-10:00 (BRT), 12:00-14:00 (CET)

Global Forum 2019 held in Manila, Philippines

Global Appeal 2021 Side Event

With the global spread of the novel coronavirus, initiatives against leprosy in various countries have been discontinued or temporarily scaled back. In order that leprosy is not forgotten amid the COVID-19 pandemic and to ensure that efforts against the disease resume in full once the pandemic is over, Sasakawa Leprosy (Hansen’s Disease) Initiative (SLI) *believes that it is important for organizations of persons with direct experience of Hansen’s disease to send a message to the world.

For World Leprosy Day 2020/World Hansen’s Disease Day 2020, SLI supported awareness-raising activities by people’s organizations that participated in the Global Forum in Manila in September 2019. These activities were carried out under a joint logo and slogan (“Hansen’s Disease-Free World with Knowledge and Love”) and made use of Facebook and other social media tools.

For World Hansen’s Disease Day 2021, we would like to collaborate once again with people’s organizations—particularly those that we are currently supporting and working together—and provide an opportunity to communicate the voices of persons affected by leprosy to the world through a series of webinars.

This webinar series formed a side event in the week leading up to the launch of Global Appeal 2021 to End Stigma and Discrimination against Persons Affected by Leprosy on January 31, 2021.

Date:26, 28, 29, 30 January, 2021 (4 days), 20:00-22:00 (JST), 8:00-10:00 (BRT), 12:00-14:00 (CET)

Theme:“Zero Leprosy for Whom in the Post-COVID World?”
     Special Webinar to hear directly from partners and to build back better

Language: English

Simultaneous interpretation: Portuguese, French and Spanish

Moderator:Prof. Takahiro Nanri, Executive Director, Sasakawa Health Foundation

Program

DAY 1: 26th January 2021, 20:00-22:00 (JST), 8:00-10:00 (BRT), 12:00-14:00 (CET)

  1. Introduction
    Prof. Takahiro Nanri, Executive Director, Sasakawa Health Foundation
  2. Keynote Speech
    Mr. Yohei Sasakawa, WHO Goodwill Ambassador for Leprosy Elimination
  3. Remarks by the representative of organization of persons affected by leprosy
    Ms. Birke Nigatu, Representative of ENAPAL
  4. Video messages by representatives of organizations of persons affected by leprosy
  5. Comments from experts
    Mr. Brent Morgan, President, ILEP, United Kingdom
    Ms. Nova Sarker, Head of HR & Administration, Lepra Bangladesh, Bangladesh
  6. Panel discussion: Discrimination and Right to Work
    -Moderator: Dr. Alice Cruz, UN Special Rapporteur on the elimination of discrimination against persons affected by leprosy and their family member
    -Panelists :
     Mr. Soe Win, MAPAL, Myanmar
     Ms. Patricia Soares, MORHAN, Brazil
     Mr. Venu Gopal Naidu, APAL, India
     Mr. Amar Bahadur Timalsina, IDEA Nepal, Nepal
     Mr. Kofi Nyarko, IDEA Ghana, Ghana

DAY 2: 28th January 2021, 20:00-22:00 (JST), 8:00-10:00 (BRT), 12:00-14:00 (CET)

  1. Reflection
    Mr. Amar Bahadur Timalsina, Board of Director, IDEA, Nepal
  2. Video messages by representatives of organizations of persons affected by leprosy
  3. Comments from experts
    Mr. José Ramirez, Jr., Board of Director, IDEA, United States
    Ms. Kerstin Beise, Chair, Dare This Indonesia, Indonesia
  4. Panel discussion: Issues of Women and Children
    -Moderator: Dr. Alice Cruz, UN Special Rapporteur on the elimination of discrimination against persons affected by leprosy and their family member
    -Panelists:
     Ms. Lilibeth Evarestus, Purple Hope Initiative, Nigeria
     Mr. Sailendra Prasad Shaw, Atma Swabhiman, India
     Ms. Sarita Pandit, NLT&SHGs, Nepal
     Ms. Birke Nigatu, ENAPAL, Ethiopia
     Mr. Md. ABM. Shahid Sharif, Bogra Federation, Bangladesh
     Ms. Fikira Ally Mteto, TLA, Tanzania

DAY 3: 29th January 2021, 20:00-22:00 (JST), 8:00-10:00 (BRT), 12:00-14:00 (CET)

  1. Reflection
    Ms. Jayashree Parasheril Kunju, Board of Director, IDEA, India
  2. Video messages by representatives of organizations of persons affected by leprosy
  3. Comments from experts
    Mr. Bill Gallo, Secretariat Director, GPZL, United States
    Mr. Artur Custodio, National Coordinator, Morhan, Brazil
  4. Panel discussion: Advocacy, Awareness-raising and elimination of Stigma
    -Moderator: Dr. Alice Cruz, UN Special Rapporteur on the elimination of discrimination against persons affected by leprosy and their family member
    -Panelists:
      Mr. Papa Mamadou Diagne, ASCL/MTN, Senegal
      Ms. Phylis Ochieng, IDEA Kenya, Kenya
      Mr. Chamada Abibo, ALEMO, Mozambique
      Mr. Md. Matiar Rahman, ALO, Bangladesh
      Mr. Shrawan Handekar, SKSS, India

DAY 4: 30th January 2021, 20:00-22:00 (JST), 8:00-10:00 (BRT), 12:00-14:00 (CET)

  1. Reflection
    Mr. Mathias Duck, Advisory Panel, ILEP, Paraguay
  2. Video messages by representatives of organizations of persons affected by leprosy
  3. Comments from experts
    Ms. Arielle Cavaliero, Global Business Director of Leprosy Flagship, Novartis, United States
    Mr. Uday Thakar, Advisor, APAL, India
  4. Panel discussion: Mental Health and Disabilities
    -Moderator: Dr. Alice Cruz, UN Special Rapporteur on the elimination of discrimination against persons affected by leprosy and their family members
    -Panelists:
     Mr. Luis Ernesto Perdomo, Felehansen, Colombia
     Mr. Joshua Aboubacar Mamane, IDEA Niger, Niger
     Ms. Annie Carrubias, PGH Hansen’s Club, Philippines
     Mr. Brima Kpeh, NAPAL, Sierra Leone
     Mr. Al Kadri, PerMaTa, Indonesia
  5. Remarks by the representative of organization of persons affected by leprosy
    Ms. Paula Brandão, Morhan, Brazil
  6. Closing remarks
    Prof. Takahiro Nanri, Executive Director, Sasakawa Health Foundation

 

*Sasakawa Leprosy (Hansen’s Disease) Initiative is a strategic alliance between the Sasakawa Health Foundation, The Nippon Foundation and WHO Goodwill Ambassador for Leprosy Elimination Yohei Sasakawa for the purpose of achieving a world without leprosy. The Nippon Foundation (founded in 1963) and Sasakawa Health Foundation (founded in 1974) have been actively involved in initiatives against the disease for over 45 years. The chairman of The Nippon Foundation is Yohei Sasakawa.

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