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Webinar: Schemes to support organizations of persons affected by leprosy during the coronavirus pandemic and their significance, 30 OCT

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Friday, 30 October 2020  16:00-17:30 (Japan Standard Time)

Sasakawa Health Foundation is implementing a grant program for organizations of persons affected by leprosy/Hansen’s disease to support people who have been severely impacted by the unprecedented crisis caused by the spread of the novel coronavirus and the social changes that have accompanied it. Under this grant program, organizations of persons affected by leprosy/Hansen’s disease are not merely recipients of aid but a sense of ownership by being involved in community support, directly contributing to problem-solving and strengthening their organizational capacity.

This webinar will spotlight the important role played by the organizations of persons affected by leprosy during this pandemic. It will also be an opportunity to communicate why leprosy still requires our attention.

Nepal Presentation (It was recorded separately later due to technical trouble on the day of the webinar.

 

Theme:
Schemes to support organizations of persons affected by leprosy during the coronavirus pandemic and their significance

Moderator:
Prof. Takahiro Nanri, Executive Director, Sasakawa Health Foundation

Program:
1. Keynote Speech
Mr. Yohei Sasakawa, WHO Goodwill Ambassador for Leprosy Elimination

2. Present Situation Faced by Persons Affected by Leprosy
Dr. Alice Cruz, UN Special Rapporteur on the elimination of discrimination against persons affected by leprosy and their family members

3. Schemes to support organizations of persons affected by leprosy
Prof. Takahiro Nanri, Executive Director, Sasakawa Health Foundation

4. Presentation of three pilot projects
-Representative of PerMaTa South Sulawesi (Indonesia)
-Representative of Bogra Federation (Bangladesh)
-Representative of Self-Help Groups (Nepal)

5. Q&A

 

PeMaTa South Sulawesi (Indonesia)
PerMaTa Indonesia was established in 2007. The vision of PerMaTa is to eliminate stigma and discrimination and improves the quality of life of people affected by leprosy. PerMaTa South Sulawesi holds 12 branches in South Sulawesi province namely Makassar, Gowa, Jeneponto, Bulukumba, Sinjai, Bone, Palopo, Wajo, Soppeng, North Toraja, Pare-pare and Sidrap. The main activities include advocacy, public awareness, new case findings in the communities and networking with other organizations. Until now, more than 300 people who have had leprosy have benefited greatly from it. Its activities have been supported by YDTI boards members.

Bogra Federation (Bangladesh)
Bogra Federation is an organization of people affected by leprosy at Bogra district in Bangladesh. The Federation consists of more than 1000 members. The main activities include advocacy, awareness raising in the communities and networking with other organizations. Their activities have been supported by Lepra Bangladesh.

Mahottari SHG Federation (Nepal)
Mahottari SHG Federation is an organization of leprosy affected people. The federation was established in 2006. It was registered in the Chief District Office on 9 October 2006 and affiliated with the Social Council. The aim of the federation is to fight against discrimination, raise awareness about leprosy, advocacy for the rights and inclusion and networking with other organizations. The federation has 34 SHGs (self-help groups) with 665 members. Their activities have been supported by NLT – LLHSC.

Read more about our COVID-19 response here.

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